Back in Hospital

Came in to hospital on Wednesday as planned, was started on Amoxicillin and Gentamycin. After being in for a week I got my needle out and was sent to the Western for my MRI scan. So now I'm back on my IV's, still in hospital and just playing a waiting game til they decide what to do with me :(

Will update when I have more info................

What a week that was :(

I was back at Gartnavel last Thursday to get started on IV's again. I'm on Ceftazadime 3g twice a day and Meropenem 2g 3 times a day. I was allowed home on the Friday as my chest wasn't too bad, my lung function was down a wee bit but they let me home any way.


On Monday, I had an appointment at the Western Infirmary for an ECG ultrasound on my heart, this test was part of my Transplant assesment. Everything was going well until they found a mass in one of the right chambers in my heart, I needed to swallow a probe so they could get a better picture from inside my stomach, not pleasant, it turns out that I have a blood clot in my heart :((explains the breathlessness and lower lung function) They admitted me so they could do some blood cultures and an MRI Scan, I was most unhappy, I thought I was only going to be there an hour at most, not getting kept in. On Tuesday I was to get the MRI scan but they couldnt do it as I have my gripper needle in for my IVs. Got back up to the ward and was told I was getting transfered to Gartnavel.

Saw the doc on Thursday and he said that they are sure I have a blood clot and a port infection but they arent taking it out as I really need it at the mo, my veins are murder. I'm giving myself blood thinning injections as well as finishing off my IV's, then goin back in to Gartnavel on Wednesday for a new/different lot of IV's, I think I've to get Amoxicyllin but I'll know more on Wednesday. They will give me another ultrasound and the MRI at a later date.

On a lighter note ;)
I'm goin to my sis-in-laws tonight for dinner, she's having an Indian night, but as I don't like Indian food, I'm getting chicken nuggets lol or chips n cheese ;)

Oh well, I'm off to do my afternoon IV's and get ready. ttfn

Update......

all this happened last month so please bear with me and my stupid dodgy memory of events :)

I was admitted to Gartnavel on Monday 1st June in preparation for my port to be fitted. I had 2 cannulas inserted so that I could be hooked up to a sliding scale,was a wee bit nervous because I have not much luck with venflons, (hence getting a port fitted;) ) but they turned out to be fine and I had no major dramas thank goodness. After a good nights sleep I was hooked up to a glucose drip and a sliding scale, my surgery wasn't 'til the afternoon so I just lay on my bed reading magazines and trying to relax until the theatre staff came to collect me. Down in the theatre area, the anesthethist (sp) gave me the General Anesthetic (sp again) to knock me out for the sugery..............Then I woke up.
Groggy and tender, I finally had my port, it's situated on my left chest wall, just below the bra line, I was also started on IV's but I didnt get to go home until 10 days into my IV's as I had problems with my bowels, thanks to the painkillers. I needed 9 jugs of kleenprep to clear my blockage :O I was finally allowed home to finish my last 5 days of IV's.
Had clinic the next week but as I had a cold, I didnt have enough puff for my Lung Function to register :(
I was started on Chloramphenicol for 10 days and they seem to have done the trick.
Just need to get my weight up now and try and get back to a normal routine.

I'm Home

Went in to hospital yesterday to get started on my IV's, didnt get my usual wee sideroom as they were all fully booked ;) must be a lot of us cfers in to get boosted for the winter, ha.

I was in a four bed ward with a couple of nice women so we had a good wee blether, better than sitting talking to yourself lol.

So far I have had no problems with my meds, so hopefully things will go smoothly over the next 2 weeks, early mornings and no galavanting for me then :)



I'm home now and getting things sorted for my last dose, and preparing my stuff to do my feeds too, I've got the diabetic clinic in the morning so I'll be off to bed in a wee bit, ah, my own bed, bliss xxx



WEIGH-IN - weight for this week - 45.6 kgs or 7 st 1lb or 100lbs

Clinic Review

At the CF clinic today I got my "official" weight : 45.1 kgs or 7stone 1lb or 99lbs 42 ounces :O

Lung Function was up slightly on last review, 0.86 last time and 0.92 today.

I had to do a walking test today which involved walking between 2 markers which were set at 10 metres apart, for 6 minutes. The Physio took my sats level and heart rate at the start of the exercise and then again after 2 minutes of walking and again after 6 minutes. She also asked me how breathless I felt on a scale of 0 - 10 ( 0 being not breathless at all and 10 being completely knackered ;) ) at these intervals.
Apparently I did rather well, for my Lung Function levels :)

But, alas, even though I got a relatively good report, I'm being admitted next week for IV's. Normally I'd be putting up a fight but I know that I need a boost before the rotten winter weather settles in for good.
So, it seems that I'm to have IV's twice a year as part of my treatment from now on. ( this will be my 3rd this year but I'm not counting the ones I had in May as they were for a boost before going on holiday )

So, tomorrow I'm going shopping (wayhay) for new 'jammies and stuff for next week.