Cant sleep ..............

............................... So I'll write a wee bit on here :)

I put my Christmas tree up yesterday. I don't remember putting the lights away in such a fankle, it took me an hour to untangle them, but it's done now and looking lovely :) and I've even got a few pressies under it, don't know how long they'll be there for because Benji is showing an interest, especially to the one with the squeeky toys in it lol but I didn't dare put the present with the doggie treats under it ........... I'm not that stupid haha.
Xenas is there too so she wont feel left out on Christmas day ;)

Talking of Xena, she is coming to stay for a few hours on Tuesday as my mum is getting her new Central Heating system installed that day - what is it with the councils, doing major maintenance work so close to Christmas???????? the whole house will need gutted out after they're finished, thats all anybody needs, all I can say is thank god its not me, I'd tell them to come back in the Summer, lol.

ok, I'm away to my bed now nite all x

Christmas :O

I bought some Christmas prezzies today, woo-hoo, so its officially Christmas time in our house.

Had to smuggle them into the house and wrap them up incase Seonaid found them lol.

I also got some stuff for wee Benji, so I've got them hidden too, Yes, I have to hide stuff from the pup, he has a knack for finding things he shouldn't lol.

Christmas tree is still a no-no. Another week or 2 before I even attempt that, he'll steal the decorations, come to think of it, he'll steal them anyway so I might as well put it up. At the weekend, maybe :)

Benji - 7 weeks old

Benji - 11 weeks old. Think he is getting too big for his bed now lol

Weights up :)

My Weight is up, I'm now 46 kgs My magic pills must be working, I'm even managing to have a breakfast and not feel sick afterwards, long may it continue, I want to get to 55kgs and hopefully I'll reach my goal by the New Year.


Wee Benji is suffering from Separation Anxiety, the wee soul is so used to one of us being with him all the time, I dare not leave him alone incase the crabbit neighbour complains about him barking, its a wee shame, he howls and barks like a maniac when I go out of sight, and you can actually see the relief on his face when he sees you're still there.
So my Christmas shopping has been delayed, I can only go into town if I get a babysitter.


Oh well, I'd better go, Its walkies time lol

ttfn

Woo-Hoo we got a wii-fit

hehe, it came this morning after months of trying every shop that could possibly sell them, I got an email late on Friday night to say that Argos had some limited stock, so, I ordered one straight away, keeping my fingers crossed and hoping there'd be some left lol.
It has not been off since lol, my daughter was off school today so the both of us had a go to find out what our wii-fitness level is - ha, mine is age 44 (not bad, considering) and Seonaids was 31 :O 15 years more than it should be, :O

Hopefully this will help with my Physio too


oh and btw, my weight has dropped again and I've been started on Olanzapine to boost my appetite, so we'll see how it goes :(

weight is 6 1/2 stone or 42.5 kgs or 93.69 pounds :'(


ttfn xxx

Crabbit Dog Hating Neighbour !!!

I had a run in with my "upstairs" neighbour today :( I'm quite annoyed and upset about it all.

To cut a long story short - He hates our new puppy Benji. In fact, his words were, " If I had wanted a F***ing Dog I'dve got a f***ing dog myself !" This was after I'd closed the driveway gates to stop Benji from running out on to the road, well Mr Graham took offence to this, they've only been shut for like, a year, since our last dog died, and now he's decided he wants them open again, hhhmmmmmm, funny how its only since we got the pup that he wants to leave them open :O huh, his partner, Mrs Wallace even encouraged the wee soul to go to her and petted him, then she shut the door on his nose :O whats that all about ??? Shouldve seen this coming though, they could hardly contain themselves when poor Satan died - auld b*******
Well I'm finished with them, I am no longer talking to Mr Graham and Mrs Wallace.

Rant Over.

Clinic Again

I got a phone call from Jane at Gartnavel today. After her visit on Monday she went back up to the hospital for a word with the Dietician about my weight. I'm to go up on Tuesday to see them as they are concerned about my weight loss again.

I've got a food diary to fill in, and to record how many enzymes I take with my meals and snacks, and I've also to keep a check on my blood sugars. Hopefully we'll be able to figure out whats going on, I can't afford to lose any more, I'm like a matchstick :(

New Family Addition

We've got a new addition to the family, a wee Springer Spaniel/Collie cross, or Sprollie as they've come to be known. His name is Benji, and is a right wee bundle of mischief. He's been with us for a week now and seems to be settling in and not missing his mummy too much. He is lying on my feet as I write this lol , I always wanted a foot muff ;)







I've finally finished my IV's, I can't believe 2 weeks can drag on for what seems like 2 months. I'm feeling a bit better, but my weight is still a problem. Speaking of my weight - Its still the same as last week :(



Getting my Flu Jab on Friday, and Benji gets his first injection on Friday afternoon. Not looking forward to that one.

TTFN

Weigh - in

Ok weight for this week is : 7 stone or 44.4kg or 98lbs :(

Hmm, not good, :( Need to start laying into those Calshakes

Seonaids Birthday

Wet and miserable day today. As it is Seonaids Birthday today, I spent last night putting up a few balloons and banners for her to come home to (she stayed with a friend last night). The balloons stayed inflated thank goodness, but the big banner I got made especially for her 16th, was blown off the fence and was unreadable because of the rain :( She never even got to see it which was a bummer, and no, I didn't get any photos of it so that made it worse. Oh well, never mind, theres always her 18th, and I'll make sure the banner is waterproof next time ;

Went to Auntie Jackies who was making a Birthday dinner for us, it was delicious. Home made Steak Pie with Mashed Potatoes, roasties and veg. Everbody cleaned there plates. :)

Then we let off some fireworks, some of the rockets weren't too good but the big 500 shot repeater was brilliant, well worth the money. Then it was back inside for the cake.

A few party games and a shot at the wii followed then it was time to come home, the kids have school in the morning haha, and I'm knackered now so I'm off to bed. :)

HAPPY BIRTHDAY SEONAID !!!

It's my baby girls 16th Birthday today, she was born at 02:51 am on the 26th October 1992, weighing, 5lbs 15 oz



Baby look at you now

Love you Honey, hope you enjoy your day xxxxxxxxxxxxxxxxxx

Football Again

Went to the football again today, wish I hadn't bothered.
It was freezing add to that the gale force winds and billowing rain, you can imagine how miserable it was, and we didn't even win. Humph !!!

So I came home, switched the fire on and changed out of my wet clothes, settled down with a lovely hot coffee to watch my Saturday night programmes, ah bliss :)

Busy day ahead of me tomorrow, Going to Barrys sisters for dinner. But, I'll need to toddle 'round to my mums for a bath first, I can't shower properly with this stupid thing in my arm, so a bath it is.

I'm off now to munch on a biscuit, and watch the telly :)

OUCH !!!

Went to A&E this morning to have my venflon re-sited. My poor arm is very red and sore, but it's not as bad as my other arm :( I think the new one is in an awkward place but it will just have to do. Hopefully this one will last the course - I don't want to have it changed again :(



Now to other news :) I'm going shopping for fireworks tomorrow for Seonaids Birthday on Sunday, I've got a leaflet for our local XS Stock store, they're selling them for half price, hopefully I'll get a few good loud ones to get the party started with a BANG haha.

HAPPY BIRTHDAY YVONNE !!!

The title says it all really :)

Grrrrrrrrrr !!!

Huh, I'm in a huff. Stupid venflon has only been in since Monday and it needs changed already.

4 DAYS - Thats a record, even for me.

So, I'm going to the local hospital A&E Dept. in the morning to get it changed, how lovely :(

Lets hope the next one lasts longer, I hate the things with a passion grrrrrrrr.

I'm Home

Went in to hospital yesterday to get started on my IV's, didnt get my usual wee sideroom as they were all fully booked ;) must be a lot of us cfers in to get boosted for the winter, ha.

I was in a four bed ward with a couple of nice women so we had a good wee blether, better than sitting talking to yourself lol.

So far I have had no problems with my meds, so hopefully things will go smoothly over the next 2 weeks, early mornings and no galavanting for me then :)



I'm home now and getting things sorted for my last dose, and preparing my stuff to do my feeds too, I've got the diabetic clinic in the morning so I'll be off to bed in a wee bit, ah, my own bed, bliss xxx



WEIGH-IN - weight for this week - 45.6 kgs or 7 st 1lb or 100lbs

Afternoon at the Football

My brother and I took my nephews Kieran and Daniel to the football today. Our local team, Kilmarnock FC were playing at home today against Motherwell.

After a freezing cold 89 minutes, a few yellow cards and one sending off, Killie scored, so it was smiling faces all round on the way home because our team won. 1 - 0 to Killie, 3 points and 3rd in the SPL, Yee-haa =]

Now I'm sitting on the couch in my jammies, coughing and spluttering watching the X Factor Results show. Just as well I'm goin in for my IV's on Monday ( I finally got my phone call on Friday )

Tomorrow will be spent gathering all my bits and pieces for Hospital, new jammies are safely hidden so Seonaid won't get to them before me ;) and my mum bought me new slippers so I'm nearly all set. Just need to calm my nerves, I hate getting Venflons fitted, in fact I hate needles period so I'm going to have to put my big brave girl face on lol. You'd think I'd be used to all this by now but it really doesn't get any better, I'm still a bag of nerves before I go.

Oh well, I'm off to get my feed stuff sorted and get myself settled in bed with my book.

Nite nite x

Knackered

Today was a lazy day for me. After going into Irvine two days in a row for appointments, I'm knackered today, I've lounged about the house with my dressing gown on, I even fell asleep on the couch for an hour this afternoon, nothing wrong with that, except I didnt get up 'til 12:30.

On Tuesday I had a meeting at the Job Center, it was one of those "back-to-work" interviews. I've been going to these things for 4 years, and everytime they ask the same questions, "How long have you had CF?" and "Do you think your CF will get better in the next 6 months?" Duh!!!
I suppose they are only doing their job, but come on people, do your research, or at least read the notes from the last interview, it saves a lot of time.
But, that was my last one as Seonaid turns 16 on the 26th of the month so they no longer need to see me.

Wednesday was my check up at the Dentist, off I, went knees shaking and my mum in tow for moral support, lol. Thankfully I didn't need any treatment so I'm back in 6 months.


So after my wee day of rest, I'll be fit for tomorrow, going back to Irvine to see about applying for a Blue Parking Badge, and then to the local Social Services Office, to reapply for my bus pass, my last one ran out so its been costing me a fortune on the bus.

Oh well, I'm off to put my NG tube in and get ready for bed, Nite Nite

Weigh-in Week 3

Ok, I'm a wee bit late with this post, due to not being able to access any scales.
But, I managed to get out today and wandered to my mums to weigh myself and the result was :-






The same as week 1 :O or 46.8kgs or 7st 4lbs or 103.6lbs


Oh well, at least its on the up again.


and I still havent had any word from the Hospital about when I've to go in for my IV's.

Clinic Review

At the CF clinic today I got my "official" weight : 45.1 kgs or 7stone 1lb or 99lbs 42 ounces :O

Lung Function was up slightly on last review, 0.86 last time and 0.92 today.

I had to do a walking test today which involved walking between 2 markers which were set at 10 metres apart, for 6 minutes. The Physio took my sats level and heart rate at the start of the exercise and then again after 2 minutes of walking and again after 6 minutes. She also asked me how breathless I felt on a scale of 0 - 10 ( 0 being not breathless at all and 10 being completely knackered ;) ) at these intervals.
Apparently I did rather well, for my Lung Function levels :)

But, alas, even though I got a relatively good report, I'm being admitted next week for IV's. Normally I'd be putting up a fight but I know that I need a boost before the rotten winter weather settles in for good.
So, it seems that I'm to have IV's twice a year as part of my treatment from now on. ( this will be my 3rd this year but I'm not counting the ones I had in May as they were for a boost before going on holiday )

So, tomorrow I'm going shopping (wayhay) for new 'jammies and stuff for next week.

Weigh-in week 2

7stone 3lbs or 46.3 kgs or 103lbs

seems like I've lost a wee bit, thats what I didn't want =[

Oh well, I've got clinic tomorrow so I'll get my "official" weight from them.

Happy Anniversary Mum & Dad

Its my Mum & Dads 40th Wedding Anniversary today =]

Went shopping yesterday to look for a present for them, came back empty handed, I was really stuck for ideas so I ended up phoning my mum to ask her what they'd like =[
Ha, I forgot that they were decorating so she would have nowhere to put anything. So I'm off the hook until the painting etc is finished so I can get her something to go with the colour scheme, phew. My dad, on the other hand was quite happy with the chocolates that I gave them so I'm still in the good books ;)


Went to McDonalds for dinner. I got a McChicken Sandwich meal (large) and a Cheeseburger - well, I do need to put some weight on so that did for starters. Came home and settled down to watch my Saturday night telly, but ended up going to Barrys dads so never saw anything, thank gawd for Sky +. I'll watch everything through the week when Seonaid's at school =]


Today though - was a lovely warm day so I spent some time with my cousin Soozi, catching up on gossip over a cappuchino, with no kids to bother us, ah bliss.


Then back home to get ready for Tescos. I love it on a Sunday night when the shops nearly empty and I can concentrate on getting everything I need, instead of just throwing any old junk in my trolley. I did get some new slippers and some fluffy bed socks tho.=] next time it'll be fluffy pyjamas, just right for snuggling on the couch and catching up with all those programmes I taped on Sky + haha

Clinic beckons !!

Jane, one of the CF sisters just phoned, my brother and I have a clinic appointment on Tuesday. It's a bit sooner than I'd like, so I'll need to start stuffing my face to get those extra pounds piled on :O

I've Gone Digital !!!

Well, my ears are digital :)

Went to the Hearing Aid clinic yesterday, for a check-up and to get new ear pieces. It seems that my hearing has gotten worse since my last visit so I am now the proud owner of the most up-to-date hearing aids available, woohoo :)
I was also told that my hearing loss isn't due to repeated infections when I was younger, It is more likely to be nerve damage so I could've been born like this, which makes sense really because for as long as I can remember, ( and I can remember things from long ago peeps ;)) I've always sat right in front of the TV with the volume blaring ( well for others it was blaring ).

Everything sounds so weird now, these things are going to take a bit of getting used to I think. Just earlier, Seonaid cleared her throat and I nearly jumped out of my skin. Ha, she'd better watch out, cos I'll be able to hear her muttering about me now when I give her into trouble.

1st Weigh-in

Weight for this week is

46.8 kg or 7st 4lbs or 103.6lbs


A bit to go before I get to 50kgs

Weekly Weigh-in ...........

I seriously need to put on some weight.


I have another clinic appointment due so I really need to sort myself out, with winter approaching us and bringing all the usual colds and flu bugs, I just can't afford (healthwise) to be this skinny.


So, as of Monday 29th September, I'm going to have a weekly weigh-in and hopefully I'll be over the 50kg mark before too long, and if all goes to plan, I won't need IV's. Which, IMO is a good thing.

Still Playing.........

Well, I managed to put my new toy down long enough for me to make some dinner. Had nippy chicken (thats what Seonaid calls it) Then sat down to watch the X factor.


Everyone else has gone to bed, including the cat, so I'm left playing again. ;)

I have just put in my NG tube so will be off to bed shortly, after a quick game of Bubble Snooker.

YAY!!! I got my wee netbook =]

Went for a wee run in the Wee Red Devil today, only went to Comet to pick up my wee netbook that I reserved this morning heehee.

Then went to Morrisons for Barrys dad, he's not well at the moment so got some stuff for him while we were out. A George Foreman Grill and some juicy steaks to cook on it.

Then straight back home so I could play with my new toy =]

Hhhmmmm, dinner could be late tonight..............

Humph !!!

Today was a lovely Autumn day, Sun was shining, slight breeze in the air, perfect weather for a wee leisurely stroll.

Humph !!!

My Joints were playing up so even if I wanted to, a wee walk was out of the question.

Chestwise, I 'm a bit wheezier but extra inhalers usually sort that out.

Took some Ibuprofen and later went to see my mum. She was cutting her grass so that made me even wheezier, typical ( rolls eyes ) So I just went inside and played with Xena ( mums wee doggie ) for a bit.

Meanwhile I'm going to surf the net for a wee pressie for myself, I fancy one of those Netbooks, its like a laptop only smaller, ideal for taking to hospital to keep in touch with everyone next time I'm admitted =] ( or is that tempting fate =[ )

TTFN

Did I mention I was scared of birds?

She's a braver one than me, Thats all I'll say =-]

Meet the Wee Red Devil

Hopefully he'll have another wee outing before the winter sets in. A wee weekend in Southerness is just what we need just now, weather permitting of course =]

First Post

Ok folks, I'm new to this blogger thing so bare with me =]

Where to start - Hmmm, well, my name is Amanda ( Manda to my chums ) I'm 35 years old and I have Cystic Fibrosis. I'm engaged to my wonderful fiance Barry, we've been together 9 and a half years and he is my world. I have a gorgeous daughter Seonaid who is 15 and is the light of my life.

Now I'm really stuck (blushes furiously) so I'm going to check out a few other blogs for some ideas, hopefully my next post should be a bit more interesting.

TTFN

Manda x