Weigh - in

Ok weight for this week is : 7 stone or 44.4kg or 98lbs :(

Hmm, not good, :( Need to start laying into those Calshakes

Seonaids Birthday

Wet and miserable day today. As it is Seonaids Birthday today, I spent last night putting up a few balloons and banners for her to come home to (she stayed with a friend last night). The balloons stayed inflated thank goodness, but the big banner I got made especially for her 16th, was blown off the fence and was unreadable because of the rain :( She never even got to see it which was a bummer, and no, I didn't get any photos of it so that made it worse. Oh well, never mind, theres always her 18th, and I'll make sure the banner is waterproof next time ;

Went to Auntie Jackies who was making a Birthday dinner for us, it was delicious. Home made Steak Pie with Mashed Potatoes, roasties and veg. Everbody cleaned there plates. :)

Then we let off some fireworks, some of the rockets weren't too good but the big 500 shot repeater was brilliant, well worth the money. Then it was back inside for the cake.

A few party games and a shot at the wii followed then it was time to come home, the kids have school in the morning haha, and I'm knackered now so I'm off to bed. :)

HAPPY BIRTHDAY SEONAID !!!

It's my baby girls 16th Birthday today, she was born at 02:51 am on the 26th October 1992, weighing, 5lbs 15 oz



Baby look at you now

Love you Honey, hope you enjoy your day xxxxxxxxxxxxxxxxxx

Football Again

Went to the football again today, wish I hadn't bothered.
It was freezing add to that the gale force winds and billowing rain, you can imagine how miserable it was, and we didn't even win. Humph !!!

So I came home, switched the fire on and changed out of my wet clothes, settled down with a lovely hot coffee to watch my Saturday night programmes, ah bliss :)

Busy day ahead of me tomorrow, Going to Barrys sisters for dinner. But, I'll need to toddle 'round to my mums for a bath first, I can't shower properly with this stupid thing in my arm, so a bath it is.

I'm off now to munch on a biscuit, and watch the telly :)

OUCH !!!

Went to A&E this morning to have my venflon re-sited. My poor arm is very red and sore, but it's not as bad as my other arm :( I think the new one is in an awkward place but it will just have to do. Hopefully this one will last the course - I don't want to have it changed again :(



Now to other news :) I'm going shopping for fireworks tomorrow for Seonaids Birthday on Sunday, I've got a leaflet for our local XS Stock store, they're selling them for half price, hopefully I'll get a few good loud ones to get the party started with a BANG haha.

HAPPY BIRTHDAY YVONNE !!!

The title says it all really :)

Grrrrrrrrrr !!!

Huh, I'm in a huff. Stupid venflon has only been in since Monday and it needs changed already.

4 DAYS - Thats a record, even for me.

So, I'm going to the local hospital A&E Dept. in the morning to get it changed, how lovely :(

Lets hope the next one lasts longer, I hate the things with a passion grrrrrrrr.

I'm Home

Went in to hospital yesterday to get started on my IV's, didnt get my usual wee sideroom as they were all fully booked ;) must be a lot of us cfers in to get boosted for the winter, ha.

I was in a four bed ward with a couple of nice women so we had a good wee blether, better than sitting talking to yourself lol.

So far I have had no problems with my meds, so hopefully things will go smoothly over the next 2 weeks, early mornings and no galavanting for me then :)



I'm home now and getting things sorted for my last dose, and preparing my stuff to do my feeds too, I've got the diabetic clinic in the morning so I'll be off to bed in a wee bit, ah, my own bed, bliss xxx



WEIGH-IN - weight for this week - 45.6 kgs or 7 st 1lb or 100lbs

Afternoon at the Football

My brother and I took my nephews Kieran and Daniel to the football today. Our local team, Kilmarnock FC were playing at home today against Motherwell.

After a freezing cold 89 minutes, a few yellow cards and one sending off, Killie scored, so it was smiling faces all round on the way home because our team won. 1 - 0 to Killie, 3 points and 3rd in the SPL, Yee-haa =]

Now I'm sitting on the couch in my jammies, coughing and spluttering watching the X Factor Results show. Just as well I'm goin in for my IV's on Monday ( I finally got my phone call on Friday )

Tomorrow will be spent gathering all my bits and pieces for Hospital, new jammies are safely hidden so Seonaid won't get to them before me ;) and my mum bought me new slippers so I'm nearly all set. Just need to calm my nerves, I hate getting Venflons fitted, in fact I hate needles period so I'm going to have to put my big brave girl face on lol. You'd think I'd be used to all this by now but it really doesn't get any better, I'm still a bag of nerves before I go.

Oh well, I'm off to get my feed stuff sorted and get myself settled in bed with my book.

Nite nite x

Knackered

Today was a lazy day for me. After going into Irvine two days in a row for appointments, I'm knackered today, I've lounged about the house with my dressing gown on, I even fell asleep on the couch for an hour this afternoon, nothing wrong with that, except I didnt get up 'til 12:30.

On Tuesday I had a meeting at the Job Center, it was one of those "back-to-work" interviews. I've been going to these things for 4 years, and everytime they ask the same questions, "How long have you had CF?" and "Do you think your CF will get better in the next 6 months?" Duh!!!
I suppose they are only doing their job, but come on people, do your research, or at least read the notes from the last interview, it saves a lot of time.
But, that was my last one as Seonaid turns 16 on the 26th of the month so they no longer need to see me.

Wednesday was my check up at the Dentist, off I, went knees shaking and my mum in tow for moral support, lol. Thankfully I didn't need any treatment so I'm back in 6 months.


So after my wee day of rest, I'll be fit for tomorrow, going back to Irvine to see about applying for a Blue Parking Badge, and then to the local Social Services Office, to reapply for my bus pass, my last one ran out so its been costing me a fortune on the bus.

Oh well, I'm off to put my NG tube in and get ready for bed, Nite Nite

Weigh-in Week 3

Ok, I'm a wee bit late with this post, due to not being able to access any scales.
But, I managed to get out today and wandered to my mums to weigh myself and the result was :-






The same as week 1 :O or 46.8kgs or 7st 4lbs or 103.6lbs


Oh well, at least its on the up again.


and I still havent had any word from the Hospital about when I've to go in for my IV's.

Clinic Review

At the CF clinic today I got my "official" weight : 45.1 kgs or 7stone 1lb or 99lbs 42 ounces :O

Lung Function was up slightly on last review, 0.86 last time and 0.92 today.

I had to do a walking test today which involved walking between 2 markers which were set at 10 metres apart, for 6 minutes. The Physio took my sats level and heart rate at the start of the exercise and then again after 2 minutes of walking and again after 6 minutes. She also asked me how breathless I felt on a scale of 0 - 10 ( 0 being not breathless at all and 10 being completely knackered ;) ) at these intervals.
Apparently I did rather well, for my Lung Function levels :)

But, alas, even though I got a relatively good report, I'm being admitted next week for IV's. Normally I'd be putting up a fight but I know that I need a boost before the rotten winter weather settles in for good.
So, it seems that I'm to have IV's twice a year as part of my treatment from now on. ( this will be my 3rd this year but I'm not counting the ones I had in May as they were for a boost before going on holiday )

So, tomorrow I'm going shopping (wayhay) for new 'jammies and stuff for next week.

Weigh-in week 2

7stone 3lbs or 46.3 kgs or 103lbs

seems like I've lost a wee bit, thats what I didn't want =[

Oh well, I've got clinic tomorrow so I'll get my "official" weight from them.

Happy Anniversary Mum & Dad

Its my Mum & Dads 40th Wedding Anniversary today =]

Went shopping yesterday to look for a present for them, came back empty handed, I was really stuck for ideas so I ended up phoning my mum to ask her what they'd like =[
Ha, I forgot that they were decorating so she would have nowhere to put anything. So I'm off the hook until the painting etc is finished so I can get her something to go with the colour scheme, phew. My dad, on the other hand was quite happy with the chocolates that I gave them so I'm still in the good books ;)


Went to McDonalds for dinner. I got a McChicken Sandwich meal (large) and a Cheeseburger - well, I do need to put some weight on so that did for starters. Came home and settled down to watch my Saturday night telly, but ended up going to Barrys dads so never saw anything, thank gawd for Sky +. I'll watch everything through the week when Seonaid's at school =]


Today though - was a lovely warm day so I spent some time with my cousin Soozi, catching up on gossip over a cappuchino, with no kids to bother us, ah bliss.


Then back home to get ready for Tescos. I love it on a Sunday night when the shops nearly empty and I can concentrate on getting everything I need, instead of just throwing any old junk in my trolley. I did get some new slippers and some fluffy bed socks tho.=] next time it'll be fluffy pyjamas, just right for snuggling on the couch and catching up with all those programmes I taped on Sky + haha

Clinic beckons !!

Jane, one of the CF sisters just phoned, my brother and I have a clinic appointment on Tuesday. It's a bit sooner than I'd like, so I'll need to start stuffing my face to get those extra pounds piled on :O

I've Gone Digital !!!

Well, my ears are digital :)

Went to the Hearing Aid clinic yesterday, for a check-up and to get new ear pieces. It seems that my hearing has gotten worse since my last visit so I am now the proud owner of the most up-to-date hearing aids available, woohoo :)
I was also told that my hearing loss isn't due to repeated infections when I was younger, It is more likely to be nerve damage so I could've been born like this, which makes sense really because for as long as I can remember, ( and I can remember things from long ago peeps ;)) I've always sat right in front of the TV with the volume blaring ( well for others it was blaring ).

Everything sounds so weird now, these things are going to take a bit of getting used to I think. Just earlier, Seonaid cleared her throat and I nearly jumped out of my skin. Ha, she'd better watch out, cos I'll be able to hear her muttering about me now when I give her into trouble.