Came in to hospital on Wednesday as planned, was started on Amoxicillin and Gentamycin. After being in for a week I got my needle out and was sent to the Western for my MRI scan. So now I'm back on my IV's, still in hospital and just playing a waiting game til they decide what to do with me :(
Will update when I have more info................
Sunday 28 February 2010
Saturday 13 February 2010
What a week that was :(
I was back at Gartnavel last Thursday to get started on IV's again. I'm on Ceftazadime 3g twice a day and Meropenem 2g 3 times a day. I was allowed home on the Friday as my chest wasn't too bad, my lung function was down a wee bit but they let me home any way.
On Monday, I had an appointment at the Western Infirmary for an ECG ultrasound on my heart, this test was part of my Transplant assesment. Everything was going well until they found a mass in one of the right chambers in my heart, I needed to swallow a probe so they could get a better picture from inside my stomach, not pleasant, it turns out that I have a blood clot in my heart :((explains the breathlessness and lower lung function) They admitted me so they could do some blood cultures and an MRI Scan, I was most unhappy, I thought I was only going to be there an hour at most, not getting kept in. On Tuesday I was to get the MRI scan but they couldnt do it as I have my gripper needle in for my IVs. Got back up to the ward and was told I was getting transfered to Gartnavel.
Saw the doc on Thursday and he said that they are sure I have a blood clot and a port infection but they arent taking it out as I really need it at the mo, my veins are murder. I'm giving myself blood thinning injections as well as finishing off my IV's, then goin back in to Gartnavel on Wednesday for a new/different lot of IV's, I think I've to get Amoxicyllin but I'll know more on Wednesday. They will give me another ultrasound and the MRI at a later date.
On a lighter note ;)
I'm goin to my sis-in-laws tonight for dinner, she's having an Indian night, but as I don't like Indian food, I'm getting chicken nuggets lol or chips n cheese ;)
Oh well, I'm off to do my afternoon IV's and get ready. ttfn
On Monday, I had an appointment at the Western Infirmary for an ECG ultrasound on my heart, this test was part of my Transplant assesment. Everything was going well until they found a mass in one of the right chambers in my heart, I needed to swallow a probe so they could get a better picture from inside my stomach, not pleasant, it turns out that I have a blood clot in my heart :((explains the breathlessness and lower lung function) They admitted me so they could do some blood cultures and an MRI Scan, I was most unhappy, I thought I was only going to be there an hour at most, not getting kept in. On Tuesday I was to get the MRI scan but they couldnt do it as I have my gripper needle in for my IVs. Got back up to the ward and was told I was getting transfered to Gartnavel.
Saw the doc on Thursday and he said that they are sure I have a blood clot and a port infection but they arent taking it out as I really need it at the mo, my veins are murder. I'm giving myself blood thinning injections as well as finishing off my IV's, then goin back in to Gartnavel on Wednesday for a new/different lot of IV's, I think I've to get Amoxicyllin but I'll know more on Wednesday. They will give me another ultrasound and the MRI at a later date.
On a lighter note ;)
I'm goin to my sis-in-laws tonight for dinner, she's having an Indian night, but as I don't like Indian food, I'm getting chicken nuggets lol or chips n cheese ;)
Oh well, I'm off to do my afternoon IV's and get ready. ttfn
Wednesday 13 January 2010
Another Angel :'(
CF has claimed another angel, Goodnight Jessica Wales, breathe easy now hun, thoughts are with your friends and family at this sad time x x x
Saturday 9 January 2010
New House Guest
With the temperature dropping to -14 last night I decided that I'd better bring Fudge ( the rabbit ) into the house, poor wee mite has been outside during all the nasty weather, I know rabbits are meant to be outside and his hutch is stuffed to the gunnels with hay and straw to keep him warm but the poor wee thing has hardly had any drinking water for 2 weeks now, every time we fill a bottle for him its frozen within the hour. :( So today I went and bought one of those house hutches, it looks like a giant hamster cage, without the wheel lol. Fudge is now cosy toasty in Seonaids room, with a baby gate at the door to stop Benji from getting in, and hes not liking it one bit. He keeps going to the gate and whimpering but theres no way I'm letting him in for a look, not til he gets used to the new noises and smells :O Now I'll see if he makes as much noise as my neighbour says he does :( Auld witch, complaining about a rabbit jumping in his hutch, a dog barking you could maybe stop but a rabbit thumping :( grrrrrr we shall see humph !!!
I was back up at Gartnavel on Wednesday, the Docs have been talking about refering me for transplant for a wee while now and have decided that the time is now to start assessments. So I went up to get some tests done. I got an x-ray, ECG and Lung Functions done as well as the 6 minute fitness test, bloods and an MRSA screen, was glad Barry was with me to ask questions and answer any that couldnt (like what I was like after my liver/kidney op) I escaped getting blood gases taken, was too traumatised from getting the other bloods done lol, will have to get it done when I'm in for IV's in a couple of weeks, theres no escaping it :( I'm back up for a CT scan and ultrasounds on Tuesday, just waiting on my appointment for a bone can to come through. Then it's just a waiting game for results. Gordan also emailed Lisa about getting me some exercise regime to do :( the thought of it makes me sore lol I think I'm doing well enough going for a wee walk during the day but obviously not, will need to build myself up and try and put more weight on, thats my main bother at the moment, I think.
Oh well, I'm off to put my NG tube in and get ready for bed, ttfn folks x
I was back up at Gartnavel on Wednesday, the Docs have been talking about refering me for transplant for a wee while now and have decided that the time is now to start assessments. So I went up to get some tests done. I got an x-ray, ECG and Lung Functions done as well as the 6 minute fitness test, bloods and an MRSA screen, was glad Barry was with me to ask questions and answer any that couldnt (like what I was like after my liver/kidney op) I escaped getting blood gases taken, was too traumatised from getting the other bloods done lol, will have to get it done when I'm in for IV's in a couple of weeks, theres no escaping it :( I'm back up for a CT scan and ultrasounds on Tuesday, just waiting on my appointment for a bone can to come through. Then it's just a waiting game for results. Gordan also emailed Lisa about getting me some exercise regime to do :( the thought of it makes me sore lol I think I'm doing well enough going for a wee walk during the day but obviously not, will need to build myself up and try and put more weight on, thats my main bother at the moment, I think.
Oh well, I'm off to put my NG tube in and get ready for bed, ttfn folks x
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